Wednesday, September 29, 2010

Bipolar Misinformation and Misrepresentation Irks Me

Sometimes people ask me where they should go for an online support group. Sometimes people ask me what other blogs I read. These are reasonable questions, unfortunately, my answer is: I would know, I don't go there.

Bipolar Support Groups

I have no problem with online support groups. Many people find them very useful and I would never try to dissuade someone from seeking one out. People need to connect, and that is what way to do it.

That said, I don't like the places much. I find online support groups full of winy people offering misguided and often untrue layperson information. I have no doubt that there are groups online that are not like that, but in my limited experience, they are.

Bipolar Blogs

As for other blogs, I am sure there are many good ones. I have occasionally mentioned a few on the Burble. But I don't read them. It comes down to writing quality, quality medical information and time. Quality writing is hard to find, trustworthy medical information can be tough, and of course, like most people, I don't have a lot of time. I tend to digest medical information from journals and the occasional feature news story. They're just more useful to me.

Bipolar Misinformation and Misrepresentation Irks Me

All that being said, I must admit, I did something stupid. I'm on a Twitter feed and last night I clicked on one of their articles. And the article was crap. Misinformation and misrepresentation of information.

I hate misinformation and misrepresentation. Like, a lot. People who do that make me want to smack them with a journalism degree.

And the thing is, I find it really difficult to stay quiet when I see misinformation and misrepresentation. I just want to slap double-blind placebo-controlled studies all over their ass. And admittedly, that is still unconvincing to many. People still think there's a big pharmacology conspiracy at work. I can't help those nuts, but I feel this gritty duty to write about the wrongs anyway.

Bipolar Misinformation and Misrepresentation Snips

And OK, as the author said, I got snippy.

I did, I admit it. I'm not perfect. I should have just made a couple of empirical points and walked away understanding that this is a very different audience than mine and that audience is likely to attack me.  I've been on the internet forever, I know you can't say anything controversial in a comment without a flame-war ensuing. I know this. And yet I allowed myself to be bated. Bad writer, bad. There are much better ways to express my thoughts than that.

Le sigh.

Now, in the author's defense, he did change the blatant inaccuracies, which I do appreciate.

So, if you'd like to have a look, tell me I'm wrong, or snitty, or perhaps lend a comment in support, go right ahead.

Good Blogs

And just in case you were wondering, some blogs that I do like are:

Don't Call Me Cybil
If You're Going Through Hell Keep Going
A Splintered Mind

Don't Forget, Tomorrow is Dissociative Identity Disorder Day

Tomorrow I will unveil Holly Gray's post on dissociative identity disorder. It's a good one. You don't want to miss it.

4 comments:

  1. Thank you for the mention. I like your blog too you know.

    (((((N))))))))

    ReplyDelete
  2. Susan,

    Oh, I know, it's a love-fest in here :)

    - N

    ReplyDelete
  3. I am just as irritated by misinformation. And by the comments to the post questioning whether Bipolar even really exists. When they have screamed at their 2 year old daughter out of the blue or been handcuffed and "escorted" to involuntary hospitalization, then they can discuss whether or not it exists. How's that for snitty?
    BTW, love the blogs and your honesty. They both have been a great help in recent weeks. Keep up the great work!

    ReplyDelete
  4. Hi Lisa,

    Yeah, the conversation has gotten all zealous and without thought so I've stepped out. I can allow the anti-psychiatry zealots to have their little party without any further interruption from me.

    Thanks for the compliment. I try.

    - N

    ReplyDelete

Thanks for taking the time to comment. Remember though, be nice. This is my playground and I will give you a time out if you don't play well with others.